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Archive for August, 2008

Parkinson\’s Disease & TAI CHI THERAPY

August 10, 2008 By: admin Category: parkinsons Comments Off

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Bill Douglas asked:


In a special to CNN, the Mayo Clinic’s mayoclinic.com reported that, “Parkinson’s disease is progressive, meaning the signs and symptoms become worse over time. But although Parkinson’s may eventually be disabling, the disease often progresses gradually, and most people have many years of productive living after a diagnosis.” This would indicate that there may be effective interventions that could perhaps slow the progress of the disease. When we get such a diagnosis, our first reaction might be to withdraw and give up. However, the old adage “use it or lose it” tells us that just the opposite is true. If you have Parkinson’s, you’d likely be best off to use everything your body is, every which way, on a regular basis.
Tai Chi movement’s gentle balance enhancing motions can obviously help the Parkinson’s patient by helping to reduce the gradual loss of balance that Parkinson’s sufferers often experience. However, there may be much more it offers. For example, Tai Chi movements rotate the human body in about 95% of the ways the body can move, when a long form is practiced. This is far beyond what other exercise offers, and in fact the closest would be several swimming strokes, which together would only rotate the body in about 65% of the ways it can move. For Parkinson’s sufferers, or anyone for that matter, this would indicate that by “using” 95% of the body’s possible motion several times a week, the possibility of “losing” the ability to do so diminishes accordingly. This isn’t rocket science, but simple common sense.
Yet, perhaps Parkinson’s patients have even more to gain from Tai Chi. A few years ago I taught several classes at local medical centers. I was continually frustrated because although I’d seen emerging reports that Tai Chi was beneficial to people with Parkinson’s Disease, or arthritis, or chronic hypertension, etc., even though the departments that specialized in those conditions were often just down the hall from my Tai Chi class . . . they might as well have been a million miles away. Because the physicians who ran those departments were either ignorant of or unwilling to refer their patients to the possibilities that Tai Chi offered their lives.
I remember though, that at one medical center a visionary neurologist began to refer patients with balance disorders to my Tai Chi classes and the result was very beneficial for his patients. Another physician actually wrote prescriptions for my Tai Chi classes to treat the chronic hypertension of his patients, who’d seen a significant drop in their blood pressure since beginning the classes weeks before. A clinical psychologist brought me in to teach Qigong (Chi Kung) meditation and Tai Chi to her patient group to enhance their sense of well being and provide effective stress management training. So, even back then some physicians were seeing the potential Tai Chi offered their clients, and even more are now, but the number of physicians who are still not informing their patients of Tai Chi’s direct therapeutic or at the least adjunct therapy benefits to their patient’s efforts to deal with their conditions and life, is increasingly indefensible in this day and age. Given the research that has exposed the many physical, mental, and emotional benefits Tai Chi offers, for physicians to not educate themselves on this and share their knowledge with each and every patient is tantamount to mal-practice. Health educators should likewise be making such therapies part of their medical student education programs as well.
Tai Chi for Parkinson’s is being recommended increasingly by support groups and some progressive medical centers, but until everyone that has Parkinson’s knows about it, then our work at World Tai Chi & Qigong Day is not done, nor is the medical community’s. There are many obvious reasons everyone with Parkinson’s should be doing Tai Chi, but it’s the ones that are not yet obvious that may be the most intriguing. One obvious reason is that Tai Chi is the most powerful balance and coordination enhancing exercise known. In many studies at major universities Tai Chi was found to be TWICE as effective in reducing falls as the other balance enhancing exercises being studied. For people with Parkinson’s, who often see their balance deteriorate as their condition progresses, it is unforgivable for them to not be informed of Tai Chi’s potential benefits at the earliest stage possible while their balance is still good.
Now, regarding the less obvious reasons Tai Chi may benefit Parkinson’s patients. Both my wife and daughter, who co-taught a Tai Chi class together noticed that a young man with severe Parkinson’s tremors . . . completely lost his tremors once he joined the class in flowing through the Tai Chi movements in class. In another class I was teaching an older man with advanced Parkinson’s attended my classes for many months, and he always came in very slow with his walker. Once we began the Tai Chi movements he no longer used his walker, and had learned the entire long form of Tai Chi I taught, which was over 15 minutes of continuous changing forms. His form was unique and tailored for his limitations, but nonetheless a challenging set of exercises he was able to accomplish without the use of his walker. What do these anecdotal experiences portend for others with Parkinson’s? I don’t know, but there should be massive research dollars coming from the National Institutes of Health to find out. Given the promise Tai Chi seems to offer people on so many profound physical, emotional, and mental fronts from preliminary research, the current total research money earmarked for complimentary and alternative medicine’s (CAM) is a mere pittance.
The National Center for Complementary and Alternative Medicine (NCCAM), now in its sixth year, supports more than 300 research projects and has an estimated budget of over $120 million for 2005 (up from $50 million in 1999). Total spending on CAM by all NIH institutes and centers is expanding as well, and is expected to reach $315 million by 2005.
Sounds like a lot? However, $120 million is less than “one half of one percent” of the total NIH FY2005 budget. According to the Association of American Medical Colleges the NIH’s total annual budget for FY 2005 is $28.8 billion (http://www.aaas.org/spp/rd/05pch8.htm). Remember, we are talking about only spending much much less than one half of one percent to study an exercise that preliminary research has shown to: n Lower High Blood Pressure (about 1/3 of Americans have hypertension - roughly over 90 million Americans) n Boost Immune Function profoundly (a study sited at drkoop.com indicates that a Tai Chi practicing group was TWICE as resistant to the shingles virus, and researchers believed this would carry over to other viral resistance as well.) n Dramatically reduce falling injuries by about half (complications from falling injuries in older Americans is the 6th leading cause of death for seniors in America)
If Tai Chi only addressed this chronic condition affecting 1/3 of Americans, while boosting the immune system of all practitioners profoundly, and cutting in half the sixth leading cause of death for seniors, without any negative side effects, that would seem to be, for the rational person a reason for pouring massive resources into researching it further. However, Tai Chi’s benefits only begin with the above preliminary findings. We also know that it may very well relieve depression, anxiety, and mood disturbance, as well as reduce ADHD symptoms in teenagers diagnosed with Attention Deficit and Hyperactivity Disorder. There are indications that Tai Chi may greatly reduce or even eliminate chronic pain conditions, and lessen allergic and asthmatic reactions, and improve overall respiratory function.
My point is, “where is the massive attention this would garner on talk shows, and in health newspaper sections, if this were a drug or surgery that could provide such a seemingly massive breakthrough in health treatment?” Peter Chowka, in a brilliant two part series for Natural Health Line, entitled “Complementary & Alternative Medicine in 2000,” wrote, “Conflicts of interest are not uncommon in most aspects of life. But in medicine, the biggest business in the U.S. (over $1.5 trillion a year constituting over 14 percent of the Gross Domestic Product, according to the National Academy of Science’s Institute of Medicine report issued January 10, 2001), serious conflicts are particularly well entrenched.” Mr. Chowka wrote of physicians like Dr. Marcia Angell voicing concerns of the “troubling” result massive research money from drug and medical-equipment companies was having on the scientific process. In the New England Journal of Medicine’s May 18, 2000 issue, Dr. Angel wrote an editorial entitled, “Is Academic Medicine for Sale?” She wrote, “As we spoke with research psychiatrists about writing an editorial on the treatment of depression . . . we found very few who did not have financial ties to drug companies that make antidepressants. . .The problem is by no means unique to psychiatry. We routinely encounter similar difficulties in finding editorialists in other specialties, particularly those that involve the heavy use of expensive drugs and devices.”
So, who can make a multi-billion dollar fortune teaching Tai Chi to people? No one can. Tai Chi cannot be bottled, or mass marketed. It is a decentralized labor intensive industry that employees many people, but keeps the profits small and local. Yes, there are videos and DVDs that teach Tai Chi effectively, but ultimately even those who utilize videos are drawn to live class like structures. As I mentioned before with the “anecdotal” experiences of my students with Parkinson’s, Tai Chi seems to offer something profoundly beneficial to the quality of life of Parkinson’s sufferers. It needs further study. We are in a catch 22, where many health professionals feel they cannot recommend Tai Chi because too much of the preliminary research is anecdotal. However, when Tai Chi is jockeying for position to get a crumb of the .5% of total NIH money going to ALL complimentary and alternative medical therapies . . . the result will be many long years of millions of people suffering needlessly from conditions or symptoms of those conditions that Tai Chi could likely safely lessen or even eliminate.
WHAT DO WE KNOW ABOUT TAI CHI AND PARKINSONS?
Tai Chi is being recommended by some forward thinking medical institutions already. The Cleveland Clinic of Neuroscience Center encourages Parkinson’s Disease patients to seek out a hobby or activity they can enjoy and stick with such as “Tai Chi” and other activities. The Alexian Neurosciences Institute in Illinois offers a course in their The Parkinson’s Disease and Movement Disorders Center. Also, the American Parkinson’s Disease Association at Stanford University Medical Center, in it’s “Beyond Pills…. Alternative Approaches to Coping with Parkinson’s Disease” program, offered “Tai Chi, The Art for Living with Parkinson’s” by Mwezo & Jane of Kujiweza Healing Arts. (Learn more at: http://parkinsons.stanford.edu/symposium.html). The Parkinson’s Society of Canada recommends Tai Chi for Parkinson’s patients, suggesting “Tai Chi may prevent or at least slow down the onset of degenerative diseases; in the long run, it can reduce need for rehabilitative care.” (http://www.parkinsons.ca/managing.html#taichi)
In the United Kingdom a Parkinson’s Tai Chi study was conducted at Camborne Redruth Community Hospital, Cornwall. Their conclusion of the study was such, “Tai Chi training was well tolerated by PD patients in this study, but had no measurable effect on motor performance using UPDRS score or GAG time. There was a non-significant improvement in quality of life scores (PDQ 39). Larger studies would be needed fully to evaluate the value and efficacy of Tai Chi. However our results are encouraging, and provide evidence for its safety and tolerability and would support the feasibility of further study.” (http://www.pdcornwall.org.uk/showarticle.pl?n=30&id=81)
WCHS TV during a news report focusing on Tai Chi’s ability to boost immune system function, also reported that “Tai Chi has also been shown to help illnesses such as Parkinson’s disease, multiple sclerosis, fibromyalgia and arthritis.” (http://www.wchstv.com/newsroom/healthyforlife/2177.shtml)
The Neurology Channel reported, “The slow flowing movements of Tai Chi help maintain flexibility, balance, and relaxation. The Struthers Parkinson’s Center in Minneapolis, which teaches a modified form of Tai Chi, consistently reports benefits achieved by patients in all stages of Parkinson’s.” (http://www.neurologychannel.com/parkinsonsdisease/surgery.s html)
Physicians at the Mayo Clinic recommend Tai Chi for Parkinson’s therapy, under their Parkinson’s “self-care” section for avoiding falls, where they suggest you “Ask your doctor or physical therapist about exercises that improve balance, especially tai chi. Originally developed in China more than 1,000 years ago, tai chi uses slow, graceful movements to relax and strengthen muscles and joints. ”
At a popular health website called “RemedyFind.com” viewers can vote on therapies they’ve found benefited their condition, or didn’t benefit it. The rating there for Tai Chi as a Parkinson’s therapy received a rating of 9.8 out of a possible 10. (http://remedyfind.com/rem.asp?ID=13945)
A Study at the University of Florida in Jacksonville found that patients who attended Tai Chi classes for one hour each week for 12-weeks were less likely than a group of control patients to experience an increase in the severity of their condition and a decrease in motor function. . . ..[of alternative therapies] the most popular therapies being Tai Chi, yoga, and acupuncture. (http://www.worldhealth.net/p/275,1526.html), (SOURCE/REFERENCE: Reported by www.reutershealth.com on the 13th November 2002)
The Atlanta Journal Constitution reported, “Parkinson’s Meets It’s Match in Tai Chi.” In this article they write that Dr. Mark Guttman, director of the Centre for Movement Disorders in Markham, Ontario, recommends people with Parkinson’s do exercises that involve a lot of stretching, similar to the movements of tai chi.
“Tai chi is wonderful; it can help people with disabilities as well as people with Parkinson’s,” he says. He added that studies on animals show exercise induces a change in the brain that prevents the symptom’s of Parkinson’s from emerging.
The Tai Chi teacher for this program, Ms. Embree, spoke of how people with fibromyalgia, multiple sclerosis, cystic fibrosis, and Parkinson’s often attend her classes . . . “Doctors are now sending people here,” adds Ms Embree. (for the entire article, go to: PARKINSON’S MEETING IT’S MATCH IN TAI CHI, April, 13, 2005, http://www.ajc.com/health/content/health/0304/lvtaichi7.html )
At the National Parkinson’s Foundation site, Melanie M. Brandabur, MD NPF Center of Excellence, University of Illinois at Chicago and Jill Marjama-Lyons, MD NPF Center of Excellence, Shands Jacksonville, wrote, “Most patients derive a great deal of benefit from today’s medications and surgical therapies for Parkinson’s Disease . . . However, benefits of these therapies can be limited. As time goes by, the medications may not seem as effective as they once were. Side effects or unpredictable response may develop. Surgical therapies are not curative and often treat only selected aspects of Parkinson’s Disease. For these reasons, patients may decide to explore other modalities, such as massage therapy, Tai Chi, yoga, or herbal preparations to augment their Parkinson’s medication . . . Many patients with Parkinson’s Disease have become interested in complementary therapies to supplement medications and other traditional PD treatments. These physicians also suggest that as Tai Chi and other modalities benefits are exposed by clinical research, physicians will advocate their use more widely. (http://www.parkinson.org/site/pp.asp?c=9dJFJLPwB&b=238635)
World Tai Chi & Qigong Day joins a growing number of health professionals specializing in fields like Parkinson’s who believe that much more research needs to be done to illuminate the full spectrum of benefits Tai Chi offers all people as well as those specifically with chronic conditions. This will enable more physicians to make Tai Chi a regular prescription written as therapy or adjunct therapy for a host of maladies many are already enjoying the benefits of for their condition, but paying out of pocket for. Ultimately more and more health insurance plans should and will make Tai Chi classes a deductible medical expense for their clients. The end result of this shift may portend the savings of hundreds of billions of dollars annually in saved health care costs as patients are better trained in self care techniques, training the great visionary Thomas Edison referred to as “the care and maintenance of the human frame,” which Edison envisioned would more and more reduce the need for expensive surgeries and life long dependence on medications as human beings maximized their own self healing abilities. Traditional Chinese Medicine has spent centuries developing and evolving self healing technologies like Tai Chi. Now the west can learn about their results, and physicians can prescribe them to their patients and our entire society will be healthier and more abundant for it.

Todd
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What is the Scope of the it Skills Crisis and Are we Tackling it in the Right Way?

August 07, 2008 By: admin Category: parkinsons Comments Off

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Karl Parkinson asked:


Recent research suggests that British Business requires 150,000 new entrants into IT each year. Over the past few years the number of graduates in IT has halved to 20,000.

The figures speak for themselves. Even the most ardent sceptic cannot deny the skills deficit that we currently face. But why does this gap exist and are industry and Government adopting the right strategies to tackle it?

In my view; it’s all about career change - supporting individuals working in the UK’s declining industries to retrain for a role in IT. But while this sounds like a practical common-sense solution to a growing problem, it is receiving little support.

Efforts are being made to promote IT to under-represented groups, such as women, but it seems that little is being achieved in terms of promoting uptake of the subject in secondary and higher education. From a relatively early age it appears that able students are led towards the sciences and IT skills are not given the same kudos.

The generation currently in secondary education has grown up with technology so their lives are dramatically different from their predecessors; access to the internet, mobile phones, sophisticated gaming consoles have all impacted their aptitude to and perception of technology. So it seems strange to me that more students aren’t inspired to study for the jobs which shape and mould these inventions. It could be that they take the technology for granted, or it could be the age old image problem.

The other issue influencing the perception of the IT industry, and one which I believe is having an impact on the number of students opting for IT courses, is outsourcing.

At the present rate it is estimated that over 100,000 IT jobs will have been transferred overseas by 2010¹. Skills shortages in the UK are creating the economic imperative for companies to outsource to or recruit from overseas.

But while low-level helpdesk skills can be outsourced effectively and in volume, the challenge comes when trying to recruit for development and programming skills required by IT departments and service providers. India, for example, is able to fill the gap because it is investing in training its population, although whether this provides an immediate answer to the problem is questionable. And other countries such as China have some way to go before they can offer a solution for British industry. So why is the Government standing by and watching when we have large numbers of poorly skilled people keen to train but simply unable to afford to do so?

If the required number of people with the right IT skills aren’t materialising through the British education system, or being sourced abroad, then the missing link needed to stimulate career transition into IT must be training.

In my view, this is the most practical solution which matches workforce supply and demand, giving individuals new opportunities while solving an industry skills deficit. But a lack of appropriate funding is holding up the process. The people most in need of the training, most likely to complete it and most likely to give the greatest contribution to the workplace after completion, are excluded from most funding initiatives. The current system falls short as funding for Government training schemes is channelled through employers; so training for a new career whilst working is inaccessible for the thousands of people unable to fund themselves.

The Government’s development of Skills Accounts that would release funds directly to individuals provides a glimmer of hope. But there is no guarantee that the scheme will be adopted and it isn’t planned to be rolled out for over two years. A more practical option would be to zero rate VAT for individuals funding their own training for a career change, but this has received little support.

To offer reassurance to industry, and a positive outlook to individuals, we must strive to provide choice and financial incentive to stimulate career change; this is the how we should tackle the skills crisis.

Joyce

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Friend with severe Parkinsons + trachaeotomy in hospital seeks to communicate but how?

August 06, 2008 By: admin Category: parkinsons 3 Comments →

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Patrick B asked:


Nothing too complicated - the simpler the better.

Ronald
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My dad has Parkinsons, what can I get him for Christmas?

August 05, 2008 By: admin Category: parkinsons 3 Comments →

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Delfunkster asked:


Because of Parkinson’s it minimises the ideas for gifts. No tiny things he cant hold, no computers games or mp3 players to walk with because he needs all the attention on himself. I have given him enough books and dvds.

John
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Coping Mechanisms for Parkinson\’s Disease

August 02, 2008 By: admin Category: parkinsons Comments Off

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David Cowley asked:


Some years ago the famous American actor Michael J. Fox made headlines when he revealed that he was suffering from Parkinson’s Disease.  While many assume that this disease is one that affects only the elderly, Mr. Fox demonstrated personally how this condition can really affect anyone at any time, and he did quite a bit of good in bringing the disease to the attention of the general public.
Parkinson’s Disease is also called shaking palsy.  The cause is not known but it appears that when an imbalance of two substances in the brain, dopamine and acetylcholine, exist then the symptoms of this disease are present.  These two substances are need to transmit messages between the nerve cells and the muscles throughout the body.  When the amount of dopamine in the brain is somehow decreased the nerve signals in the brain become confused.
Dopamine assists with muscle control and without it the body has a hard time controlling its own movements.  Those with this disease usually have severe trembling in the hands, arms, legs, the areas of their face, or may experience rigidity and stiffness of their limbs and they may also have problems with incontinence.  Typically they also have a slowness of movement and problems with posture and balance.  As the disease progresses the patient may have trouble walking, talking, and with other everyday tasks.  Extreme cases of the disease may result in difficulty with chewing and swallowing, and even speaking.
Treating Parkinson’s Disease
As of now there is no cure for the disease but there are many treatment options available.  Medications can help with dopamine production by stimulating the nerves responsible for this.  Other medications can help with the symptoms of Parkinson’s Disease by stimulating the muscles so that rigidity is reduces.  Other may help with tremor.  In some cases there may be surgeries that one can undergo; electrodes can be implanted into the brain so that certain areas are stimulated.
Other Options
Parkinson’s Disease can be very difficult for the patient; not being able to control one’s movements can make even the smallest of tasks very difficult.  However, understanding one’s limitations is the first step toward coping and treating the disease.  A patient may need to make accommodations around the house and the office.  Installing rails in the bathroom can help.  When swallowing becomes difficult it’s time to slow down around mealtime and take your time.  Smaller bites and liquid foods are advisable.  Some employers will accommodate those with this disease by allowing them to use computers that respond to voice commands so that typing is no longer as necessary.  Other adjustments can be made to one’s place of employment as well; moving a desk or work space closer to the restroom and using the phone and email instead of needing to show up in person for conferences and meetings can help as well.  These are small changes but can make a big difference for the one with this disabling disease.
It’s good to let friends and family know if you have Parkinson’s Disease so they can readily assist with chores, and talk to your doctor about getting assistance from visiting nurses and other help.
Always consult your doctor before using this information.
This Article is nutritional in nature and is not to be construed as medical advice.

Gabriel
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should a parkinsons patient known to carry the bad pku gene follow the low protein diet?

August 02, 2008 By: admin Category: parkinsons 1 Comment →

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Supermariosunshine77 asked:


My father in- law has advanced parikinsons disease. 2 of his childern have classic pku. Should he follow a low protein diet?

Nicole
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